ALS is not an incurable disease - it is an underfunded one.
In my religious tradition, we are told that though the world is filled with violence, sadness and all forms of chaos and tribulation – and goodness knows we’ve all seen that in the past two years – that a loving presence abides with us and cannot be overcome. For me, through all the pandemic, political upheavals, the wars, the damage to our planet, and the mass displacement of large populations of people, one of the greatest pieces of evidence of this loving presence is your continued support of my contribution to this fight against ALSOver the years, I have known, or dear friends have known, several people who have been diagnosed with ALS. For quite a while now, my prayers have consistently included someone who suffers from or has recently passed away from ALS. . I am moved and humbled that you have not forgotten the smaller scale suffering of the patients and families of a devastating disease like ALSLast year, after the pandemic, the event returned to the 3-day format from Boston to Greenwich, but this year, we'll be based in New Hampshire riding loops over 2 days. This improvement will make it easier for the team to manage, more family and friend friendly, and more accommodating for ALS patients to participate rather traipsing from venue venue. I'll be doing to 100 mile loops on successive days, which will be quite the challenge, though I do admit that I will miss the old route taking me cross country.More importantly, there is some good news on the research front, the ALS-Therapy Development Institute had sent three treat drugs to human trials, and has two more targets that look very promising. They have also pioneer the ALS Research Collaborative, which make sharing of information and research across the world much easier.So, once again, I humbly ask for your support for this very worthy cause - both financial and with your thoughts and prayers - for all of us volunteering and riding, for those searching for a cure, but mostly for those who have been diagnosed with this cruel disease. Let's make a big push against it.
