ALS is not just something I care about. It's something that runs in my family.

My dad was diagnosed with ALS and over the course of just 18 months, we watched a vibrant, strong, and loving man lose his ability to walk, speak, and eventually breathe. ALS is relentless and moves quickly, and there is still no cure.

After my dad's diagnosis, we learned that his ALS was caused by a genetic mutation called C9orf72. That meant this wasn't just something that happened to him. It meant our entire family was affected.

I later learned that I carry the same C9orf72 mutation.

That reality changes everything. This fight is not only about honoring my dad, it's also about changing the future for my family and others facing inherited ALS.

This year, I'm volunteering with the Tri-State Trek to support the ALS Therapy Development Institute and the critical research they are driving forward. Every dollar raised goes directly toward accelerating treatments and ultimately finding a cure.

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While I'm not riding, I'm proud to support the riders, the community, and the mission behind this event. Volunteering is my way of staying involved in a fight that is deeply personal to me.

ALS moves fast. Research needs to move faster.

This effort is for my dad.
For my family.
For everyone living with the uncertainty of genetic ALS.
And for the future I still believe is possible.

If you're able, please consider donating or sharing this page. Every contribution helps move us closer to ending ALS.

Thank you for being part of this with me.

Emily