Tri-State Trek Individual Fundraising
Rachel Jones
Team Captain    Participant on Often Awesome
Rachel's Often Awesome Trek Fundraising Page

ALS sucks but it's been sucking in my family longer than most. You see, we have the SOD1 gene so that makes us one of the 'lucky' families that has familial ALS. In my lifetime, I lost both my mom and grandmother in 1982, my brother (at 31) in 2011 and my uncle in 2017.  I was diagnosed in October of 2024; I have access to medication that would not have been available even 2 years ago BECAUSE of the research that continues to happen. ALS TDI continues to be an important part of that research. 

While I’ve had to hang up my riding shoes, as a team we’re still riding and raising money to support ALS TDI because we need a cure. ALS sucks. Please help us make it suck less. 


(Picture is of Tim and Rachel at Rachel's wedding in January of 2004)

Current Total: $13,600.00
Fundraising Goal: $1,000.00
Recent Contributors
  • Walter & Parker Jones
    $10,500.00
    We miss our mommy. Paws down to Corner Cat
  • Often Awesome, Inc.
    $2,000.00
    This is mostly the final balance from the business account for Often Awesome, Inc., which Rachel founded with Michael Sileno and me after Tim died. We never ended up doing a lot with the corporate entity, so it never got a lot of attention. Michael and I are dissolving the corporation, and I believe Rachel would have wanted this remaining money to go to ALS TDI.
  • Cindy Brightman
    $350.00
  • Rachel Jones
    $250.00
  • Lisa Melton
    $100.00
  • Judith Balbo
    $50.00
  • Lisa Orourke
    $50.00
  • Bonnie J Flaxington
    $50.00
  • Unum Matching Gifts
    $50.00
  • Patricia DiFranco
    $50.00
  • Milka aka Token
    $50.00
    Luv ya Rachel! This has been a passion of yours since forever. I know you're a fighter and will keep pushing through. Let's keep trecking for a cure!!!
  • Harrington Family
    Hidden
Recent Contributors
  • Walter & Parker Jones
    $10,500.00
  • We miss our mommy. Paws down to Corner Cat
  • Often Awesome, Inc.
    $2,000.00
  • This is mostly the final balance from the business account for Often Awesome, Inc., which Rachel founded with Michael Sileno and me after Tim died. We never ended up doing a lot with the corporate entity, so it never got a lot of attention. Michael and I are dissolving the corporation, and I believe Rachel would have wanted this remaining money to go to ALS TDI.
  • Cindy Brightman
    $350.00
  • Rachel Jones
    $250.00
  • Lisa Melton
    $100.00
  • Judith Balbo
    $50.00
  • Lisa Orourke
    $50.00
  • Bonnie J Flaxington
    $50.00
  • Unum Matching Gifts
    $50.00
  • Patricia DiFranco
    $50.00
  • Milka aka Token
    $50.00
  • Luv ya Rachel! This has been a passion of yours since forever. I know you're a fighter and will keep pushing through. Let's keep trecking for a cure!!!
  • Harrington Family
    Hidden
Rachel's Often Awesome Trek Fundraising Page