This will be the 11th year in a row that I participate in the Tri-State Trek, the 280-mile bike ride from Boston to Greenwich, Conn. to call attention to ALS.
Why do I continue to ride? Because after all these years of fundraising, there's still no cure for ALS, a cruel fatal disease that causes total paralysis. After our brother Chuck died of ALS in 2009, my brother Breen and I vowed to keep riding until researchers discover a cure. Recently, the FDA approved the first new drug to treat ALS in over 20 years. There is evidence the drug slows disease progression in some patients. But it's not a cure and we need to keep going.
ALS-TDI which sponsors the annual Trek, is the largest non-profit research institution in the U.S. devoted entirely to ALS research. They depend on the nearly $1 million raised by the Trek every year – almost 10% of their annual budget -- to help fund numerous promising research projects.
Our team that began in 2009 with three riders has grown to 29 this summer from across the U.S. including Chicago, Washington D.C., Ohio, New York and New Jersey.
I’d like to thank all of you for a decade of donations and especially your moral support through the years. You don’t have to give every year, and you don’t have to give much. For those who do, please know you are making a difference.
Never Give Up!