I was diagnosed with ALS in May 2014 at the age of 33. My first symptoms were tight hamstrings while training for my first half Ironman. In 8 months, I went from the strongest I’d ever been to walking with a cane.
My progression has been remarkably slow since that first decline. Six years into ALS, I am still able to walk (albeit with a walker), talk (albeit slowly), drive, swim, and ride my recumbent trike. I show my gratitude for this continued strength and gift of time by enjoying my life to the fullest and raising money for ALS research.
I usually do the last 9 miles of the Trek with the scientists (a great honor for me!), but since it's all virtual this year, I am challenging myself to do all 270 miles of the Tri-State Trek...in our cul-de-sac! (Our friend Glynis calls this "Hamster Time").
If you are in a position to give and would like to support my cul-de-sac journey for ALS TDI, THANK YOU. Any gift is appreciated but here are some fun suggested amounts:
$1/mi = $270
$0.50/mi = $135
$0.01/mi = $27
Stay safe, my friends.