Maxanne Menezes' Fundraising Page
Riding for those who no longer can
In honor of my father Sylvan Menezes, I’ll be riding with Team America in the ALS-TDI Tri State Trek to end ALS!
As Sylvan was a man of adventure and the outdoors, the Tri-State trek is a fitting way for me to honor his legacy and bring awareness and funding in discovering a cure for this horrific disease. Sylvan was realistic about the prospect of finding a cure for ALS during his lifetime, but he remained active in fundraising and educating others on this disease in hopes of a better outcome for future diagnosed patients. ALS-TDI was a special place for Sylvan as he got to see first-hand the amazing research being conducted. ALS-TDI also provided him once-in-a-lifetime experiences, like the time he got to sit in John Henry’s seat at the Red Sox game at Fenway. While we knew the devastating reality of ALS, this amazing institution gave Sylvan purpose and strength with his diagnosis.
Some ALS facts….
- Every 90 minutes someone is diagnosed with amyotrophic lateral sclerosis (ALS)
- ALS, also known as Lou Gehrig’s disease, attacks certain cells in the brain and spinal cord needed to keep our muscles moving
- Most people with ALS live 2-5 years after their first signs of disease. About 10% of people with ALS survive at least 10 years. This variable rate of disease progression makes prognosis difficult to predict and therapies challenging to develop.
The ALS Therapy Development Institute is the world's first and largest nonprofit biotech focused 100 percent on ALS research. ALS TDI has tested more potential treatments for ALS than any other research lab, thanks to support from fundraising events like the Tri-State Trek. Still, there’s no effective treatment or cure for ALS and the momentum in research can only continue through your generous donations.
Your love and support is greatly appreciated as we miss Sylvan dearly and continue his legacy and fight against ALS! ALS is not an incurable disease. It is an underfunded one!
Health, Happiness & Love