Hugh Macdonnell's Fundraising Page
Riding for those who no longer can.
At 6am on June 23, I will start the Tri-State Trek for the 6th year. The Trek is the 270-mile bike ride from Boston to Greenwich, Ct. to raise money and awareness for ALS -- also known as Lou Gehrig’s disease.
I started riding the Trek in 2012 in honour of my mother-in-law, Betty Anne Chapman. She was amused that I was going to ride for her to raise money; my focus on ALS funding increased after she died in 2013. I will never forget the sense of hopelessness our family felt in the face of this devastating illness: no one knows what causes it, it generally results in total paralysis within 2-5 years, and there is no cure.
I ride in Betty Anne’s memory. But now I also ride for all the people I’ve met who are still struggling with this disease. We want to give them hope. Riding this challenging event, raising money, talking about ALS, helps people suffering from the disease face the future with optimism.
Earlier this year, the ALS community received the best news it’s had in decades: The FDA approved the first new drug to treat ALS in over 20 years. There’s evidence the drug slows disease progression among some patients. And while we are thrilled by the positive news, we need to continue funding research until there’s an actual cure.
Our team, Crush ALS/Team Bannon, has been the No. 1 fundraiser for the Trek for the past four years. With your help and generosity, we raised an astonishing $200,000 last year alone, and we hope to do it again. All the money raised benefits Boston-based ALS Therapy Development Institute, the nation’s leading non-profit research lab for ALS (www.als.net).
I continue to ask for your donations because I believe we are making a difference. Whether you give once or annually, large or small, each bit makes a difference. Over the years, I have been joined by several friends each year; plan to join in 2018! To donate, please click “Donate now” or send a check to Crush ALS, c/o me, Clarion Partners, 230 Park Avenue, NY, NY 10169.
Discovery of the new treatment this year makes me hopeful scientists are on their way to a major breakthrough in curing this disease.
Thank you all for your ongoing support: http://tst.als.net/macdonnell