Team Captain

Lisa Bannon

Riding For Chuckie
Lisa Bannon
  • Rider
  • 11th Trek

Lisa Bannon

Riding For Chuckie

This will be the 10th year in a row that I participate in the Tri-State Trek, the 280-mile bike ride from Boston to Greenwich, Conn. to call attention to ALS. Why do I continue to ride? Because after all these years of fundraising, there's still no cure for ALS, a cruel fatal disease that causes total paralysis.  After our brother Chuck died of ALS in 2009, my brother Breen and I vowed to keep riding until researchers discover a cure. Last year, the FDA approved the first new drug to treat ALS in over 20 years. There is evidence the drug slows disease progression in some patients. But it's not a cure and we need to keep going. ALS-TDI which sponsors the annual Trek, is the largest non-profit research institution in the U.S. devoted entirely to ALS research. They depend on the nearly $1 million raised by the Trek every year – almost 10% of their annual budget -- to help fund numerous promising research projects. Thanks to all of you, CrushALS/TeamBannon alone raised a record $250,000 last year, the biggest fundraiser of the Trek.   Our team that began in 2009 with three riders has grown to 29 this summer from across the U.S. including Chicago, Washington D.C., Ohio, New York and New Jersey. I’d like to thank all of you for a decade of donations and especially your moral support through the years. You don’t have to give every year, and you don’t have to give much. For those who do, please know you are making a difference. Never Give Up!  

Lisa Bannon
  • Rider
  • 11th Trek

This will be the 10th year in a row that I participate in the Tri-State Trek, the 280-mile bike ride from Boston to Greenwich, Conn. to call attention to ALS. Why do I continue to ride? Because after all these years of fundraising, there's still no cure for ALS, a cruel fatal disease that causes total paralysis.  After our brother Chuck died of ALS in 2009, my brother Breen and I vowed to keep riding until researchers discover a cure. Last year, the FDA approved the first new drug to treat ALS in over 20 years. There is evidence the drug slows disease progression in some patients. But it's not a cure and we need to keep going. ALS-TDI which sponsors the annual Trek, is the largest non-profit research institution in the U.S. devoted entirely to ALS research. They depend on the nearly $1 million raised by the Trek every year – almost 10% of their annual budget -- to help fund numerous promising research projects. Thanks to all of you, CrushALS/TeamBannon alone raised a record $250,000 last year, the biggest fundraiser of the Trek.   Our team that began in 2009 with three riders has grown to 29 this summer from across the U.S. including Chicago, Washington D.C., Ohio, New York and New Jersey. I’d like to thank all of you for a decade of donations and especially your moral support through the years. You don’t have to give every year, and you don’t have to give much. For those who do, please know you are making a difference. Never Give Up!  

Team Members

Robert Higgins

Riding 270 Miles in 3 days for Team Bannon-Crush ALS
Robert Higgins
  • Rider
  • 5th Trek

Robert Higgins

Riding 270 Miles in 3 days for Team Bannon-Crush ALS

By now, almost everyone knows about ALS (Lou Gehrig's Disease).  Many have had the misfortune of direct experience with the disease.  Suffice it to say that it is a devastating and dreadful disease.  We are committed to eradicating it. ALS is not incurable.  Rather, it is underfunded.  The Tri State Trek provides a meaningful portion of the annual budget of the ALS Therapy Development Institute (ALS-TDI).  ALS-TDI is the world's foremost drug discovery center focused exclusively on ALS.  Pioneering the "biotech model," ALS-TDI places the patient at the center of every decision made in the lab.  The team of scientists at ALS-TDI collaborates daily in the lab and through pharmaceutical company partnerships worldwide to discover cures and treatment for ALS. Just since I began riding in the Tri State Trek in 2015,  ALS-TDI has developed a novel antibody known as AT-1501, which acts in a highly targeted disease specific way to tamp down the immune system.  This potential therapeutic has been extensively screened and is now ready for clinical trial.  Currently, it is being evaluated for safety in non-human primates after demonstrating very promising signs in laboratory mice.  The estimated cost of the Phase 2 portion of this trial is a whopping $30 million. Last summer our team, Team Bannon-Crush ALS, raised more than $200,000.00 in contributions to the Tri State Trek.  The total amount of donations raised by all teams approached $1 million.  This year (the tenth for our team) we have set a lofty goal of $300,000.00 for the team and $1.5 million for the ride itself.  This can only happen through the generosity and compassion of our wonderful donors. While I have not had a relative diagnosed with ALS, I have clearly been impacted by the disease through the people I have met who are associated with the Tri State Trek and ALS TDI.  The riders and those they ride for, as well as the doctors and staff at ALS TDI, are truly inspirational. It is rewarding to see our team grow and our fund raising efforts flourish for such a worthwhile cause. This is the only cause for which you will ever receive a fundraising plea from me. The 270 mile, three-day bike ride, from Boston to Greenwich, CT,  takes place June 22-24, 2018.  I am asking that you support me as we make our way through the winding hills of Massachusetts and Connecticut and into New York.  Your contribution will place your name on the list of recipients of my daily ride updates, as I share this wonderful experience with you. Please be as generous as you can. And please take a moment to view the inspirational video attached describing this epic ride.  I hope that you will find this to be a worthwhile cause.  Thank you, in advance, for your support. Riding for a cure, Bob    

Robert Higgins
  • Rider
  • 5th Trek

By now, almost everyone knows about ALS (Lou Gehrig's Disease).  Many have had the misfortune of direct experience with the disease.  Suffice it to say that it is a devastating and dreadful disease.  We are committed to eradicating it. ALS is not incurable.  Rather, it is underfunded.  The Tri State Trek provides a meaningful portion of the annual budget of the ALS Therapy Development Institute (ALS-TDI).  ALS-TDI is the world's foremost drug discovery center focused exclusively on ALS.  Pioneering the "biotech model," ALS-TDI places the patient at the center of every decision made in the lab.  The team of scientists at ALS-TDI collaborates daily in the lab and through pharmaceutical company partnerships worldwide to discover cures and treatment for ALS. Just since I began riding in the Tri State Trek in 2015,  ALS-TDI has developed a novel antibody known as AT-1501, which acts in a highly targeted disease specific way to tamp down the immune system.  This potential therapeutic has been extensively screened and is now ready for clinical trial.  Currently, it is being evaluated for safety in non-human primates after demonstrating very promising signs in laboratory mice.  The estimated cost of the Phase 2 portion of this trial is a whopping $30 million. Last summer our team, Team Bannon-Crush ALS, raised more than $200,000.00 in contributions to the Tri State Trek.  The total amount of donations raised by all teams approached $1 million.  This year (the tenth for our team) we have set a lofty goal of $300,000.00 for the team and $1.5 million for the ride itself.  This can only happen through the generosity and compassion of our wonderful donors. While I have not had a relative diagnosed with ALS, I have clearly been impacted by the disease through the people I have met who are associated with the Tri State Trek and ALS TDI.  The riders and those they ride for, as well as the doctors and staff at ALS TDI, are truly inspirational. It is rewarding to see our team grow and our fund raising efforts flourish for such a worthwhile cause. This is the only cause for which you will ever receive a fundraising plea from me. The 270 mile, three-day bike ride, from Boston to Greenwich, CT,  takes place June 22-24, 2018.  I am asking that you support me as we make our way through the winding hills of Massachusetts and Connecticut and into New York.  Your contribution will place your name on the list of recipients of my daily ride updates, as I share this wonderful experience with you. Please be as generous as you can. And please take a moment to view the inspirational video attached describing this epic ride.  I hope that you will find this to be a worthwhile cause.  Thank you, in advance, for your support. Riding for a cure, Bob    

Sandra Botnen

Sandra Botnen
  • Rider
  • 5th Trek

Sandra Botnen

Be a part of something BIG. Team Bannon started nearly 10 years ago when a brother and sister began riding through their grief after loosing a sibling to ALS.  They committed to keep riding until there is a cure.  We are now 17 riders deep and growing, and our team alone has raised over a million dollars!  What is even bigger is that breakthroughs in medicine and technology are gaining momentum.  New drugs, coupled with new capabilities in patient monitoring and data processing mean there is more than hope.  There is more tahn ever, a path to cure.  Pleases join me in being a part of somehting big.   Make a donation and then sign up for the ALS TDI newsletter to watch this thing unfold.  Sandra Wilson  

Sandra Botnen
  • Rider
  • 5th Trek

Be a part of something BIG. Team Bannon started nearly 10 years ago when a brother and sister began riding through their grief after loosing a sibling to ALS.  They committed to keep riding until there is a cure.  We are now 17 riders deep and growing, and our team alone has raised over a million dollars!  What is even bigger is that breakthroughs in medicine and technology are gaining momentum.  New drugs, coupled with new capabilities in patient monitoring and data processing mean there is more than hope.  There is more tahn ever, a path to cure.  Pleases join me in being a part of somehting big.   Make a donation and then sign up for the ALS TDI newsletter to watch this thing unfold.  Sandra Wilson  

John Wilson

Riding for those who no longer can.
John Wilson
  • Rider
  • 6th Trek

John Wilson

Riding for those who no longer can.

This summer I am riding 270 miles to find an effective treatment for ALS. Please support my efforts.

John Wilson
  • Rider
  • 6th Trek

This summer I am riding 270 miles to find an effective treatment for ALS. Please support my efforts.

Ted Schmitt

Please help me find a Cure for ALS
Ted Schmitt
  • Rider
  • 1st Trek

Ted Schmitt

Please help me find a Cure for ALS

  I am riding 270 miles in June of this year to help raise money for ALS research and to honor the memory of my mother Elizabeth "Betty" Cunningham.   My mother passed away on January 9, 2018 at the age of 81.  She was misdiagnosed for the better part of 2 years. During this time, they initially thought it was a pinched nerve or possible nerve damage.   We would joke that she was a klutz and would just trip over things or that her knee would give out. She had seen numerous doctors in Philadelphia and over the course of time, nothing worked.  Doctors then believed it could possibly be a damage nerve that needed to regenerate, or MS, maybe Parkinson’s, but no one could figure it out.  My mother was a nurse for nearly 43 years and both of my sisters followed in her footsteps.  Suzanne and Jacqui have also participated in the Philadelphia and Boston ALS walks in honor of my mother.    Suzanne, who lives in Massachusetts, was able to get an appointment for her in to see the Neurology Staff at Massachusetts General.  Mass General is known for ALS treatment. My mother and stepfather traveled up the east coast to seek specialists’ attention.  I cannot say enough good things about the staff at Mass General- they were fantastic.  The time they spent with all of us was overwhelming.  After a few tests our fears were confirmed, my mother had ALS.   From diagnosis to her passing, she fought for 5 months.    I was able to be there with her during her diagnosis in August of 2018.   I flew into Boston that November and celebrated Thanksgiving with my mom, stepfather, Suzanne and her family.  In a short amount of time, my mother’s daily ability was drastically reduced.  The woman who always did for everyone was now a prisoner to her own body.  Days before her passing I received the call no one wants and everyone dreads, “Ted, you need to get here and quickly”.  I was with my mom on her final days.  I felt terrible asking God to take her, but I couldn’t watch her suffer.   I think about her every day, especially those when I‘m cycling and trying to catch my breath…that’s what I watched her do in her final days.  This ride is very personal to me for obvious reasons.  All funds will be donated to the ALS Therapy Development Institute in Cambridge, MA.  On behalf of myself, my sisters, and our families- THANK YOU FOR YOUR DONATION.  

Ted Schmitt
  • Rider
  • 1st Trek

  I am riding 270 miles in June of this year to help raise money for ALS research and to honor the memory of my mother Elizabeth "Betty" Cunningham.   My mother passed away on January 9, 2018 at the age of 81.  She was misdiagnosed for the better part of 2 years. During this time, they initially thought it was a pinched nerve or possible nerve damage.   We would joke that she was a klutz and would just trip over things or that her knee would give out. She had seen numerous doctors in Philadelphia and over the course of time, nothing worked.  Doctors then believed it could possibly be a damage nerve that needed to regenerate, or MS, maybe Parkinson’s, but no one could figure it out.  My mother was a nurse for nearly 43 years and both of my sisters followed in her footsteps.  Suzanne and Jacqui have also participated in the Philadelphia and Boston ALS walks in honor of my mother.    Suzanne, who lives in Massachusetts, was able to get an appointment for her in to see the Neurology Staff at Massachusetts General.  Mass General is known for ALS treatment. My mother and stepfather traveled up the east coast to seek specialists’ attention.  I cannot say enough good things about the staff at Mass General- they were fantastic.  The time they spent with all of us was overwhelming.  After a few tests our fears were confirmed, my mother had ALS.   From diagnosis to her passing, she fought for 5 months.    I was able to be there with her during her diagnosis in August of 2018.   I flew into Boston that November and celebrated Thanksgiving with my mom, stepfather, Suzanne and her family.  In a short amount of time, my mother’s daily ability was drastically reduced.  The woman who always did for everyone was now a prisoner to her own body.  Days before her passing I received the call no one wants and everyone dreads, “Ted, you need to get here and quickly”.  I was with my mom on her final days.  I felt terrible asking God to take her, but I couldn’t watch her suffer.   I think about her every day, especially those when I‘m cycling and trying to catch my breath…that’s what I watched her do in her final days.  This ride is very personal to me for obvious reasons.  All funds will be donated to the ALS Therapy Development Institute in Cambridge, MA.  On behalf of myself, my sisters, and our families- THANK YOU FOR YOUR DONATION.  

David Voreacos

David Voreacos
  • Rider
  • 3rd Trek

David Voreacos

Hola, friends. On June 22, I’ll begin my second year in the Tri-State Trek, a 270-mile bike ride over three days from Boston to Greenwich, CT. Hundreds of cyclists raise money and awareness for ALS, also known as Lou Gehrig’s disease. I’m fortunate to be a member of Crush ALS/Team Bannon, which is participating for the tenth year.  Our team raised more than $200,000 last year, and we hope to do even better this year. Would you consider donating?

David Voreacos
  • Rider
  • 3rd Trek

Hola, friends. On June 22, I’ll begin my second year in the Tri-State Trek, a 270-mile bike ride over three days from Boston to Greenwich, CT. Hundreds of cyclists raise money and awareness for ALS, also known as Lou Gehrig’s disease. I’m fortunate to be a member of Crush ALS/Team Bannon, which is participating for the tenth year.  Our team raised more than $200,000 last year, and we hope to do even better this year. Would you consider donating?

David Snyder

Riding for veterans, relatives, friends and strangers who cannot!
David Snyder
  • Rider
  • 2nd Trek

David Snyder

Riding for veterans, relatives, friends and strangers who cannot!

This summer I am driving 1800 miles to ride 270 miles on my bicycle to raise money to help find an effective treatment for ALS. I've committed the 4th weekend in June 2018 to helping others...friends who have lost loved ones...strangers...and fellow veterans, who are nearly twice as likely to develop ALS. I'd appreciate your support.

David Snyder
  • Rider
  • 2nd Trek

This summer I am driving 1800 miles to ride 270 miles on my bicycle to raise money to help find an effective treatment for ALS. I've committed the 4th weekend in June 2018 to helping others...friends who have lost loved ones...strangers...and fellow veterans, who are nearly twice as likely to develop ALS. I'd appreciate your support.

Breen Bannon

Riding for those who no longer can.
Breen Bannon
  • Rider
  • 11th Trek

Breen Bannon

Riding for those who no longer can.

In 2019 Crush ALS/Team Bannon will field the largest team yet to combat ALS, also known as Lou Gehrig's disease, by riding the Tri State Trek.  This with be Lisa and Breen Bannon's 11h Trek, and we can't wait! The Trek, a 270-mile, three-day charity bicycle ride, benefits ALS-TDI, a Boston-based non-profit that is leading research into finding a treatment and cure for ALS.  By supporting me you can bring hope and a future to not only the people with ALS today, but to the people who will be diagnosed next, and next,and next.......   Team Bannon began in 2009 after Lisa and Breen Bannon lost their brother, Chuck, to ALS after a three-year battle. We vowed to continue riding until we raise enough money to find a cure or treatment.     With your help and generosity, our team has raised over $1,000,000....thats ONE MILLION DOLLARS! for research to find a cure.  Our team has been the No. 1 fundraiser for the Trek for the past 5 years, quite an accomplishment for our small grass roots effort.  All the money raised benefits ALS-TDI, the nation’s leading non-profit research lab for ALS (www.als.net).  The lab is 100% focused on ALS research.   Thank you all for your ongoing support of my efforts on behalf of ALS-TDI. I truly believe we are making a difference in the battle to end this cruel disease. Check us out on Facebook https://www.facebook.com/CrushALSTeamBannon?hc_location=timeline Breen

Breen Bannon
  • Rider
  • 11th Trek

In 2019 Crush ALS/Team Bannon will field the largest team yet to combat ALS, also known as Lou Gehrig's disease, by riding the Tri State Trek.  This with be Lisa and Breen Bannon's 11h Trek, and we can't wait! The Trek, a 270-mile, three-day charity bicycle ride, benefits ALS-TDI, a Boston-based non-profit that is leading research into finding a treatment and cure for ALS.  By supporting me you can bring hope and a future to not only the people with ALS today, but to the people who will be diagnosed next, and next,and next.......   Team Bannon began in 2009 after Lisa and Breen Bannon lost their brother, Chuck, to ALS after a three-year battle. We vowed to continue riding until we raise enough money to find a cure or treatment.     With your help and generosity, our team has raised over $1,000,000....thats ONE MILLION DOLLARS! for research to find a cure.  Our team has been the No. 1 fundraiser for the Trek for the past 5 years, quite an accomplishment for our small grass roots effort.  All the money raised benefits ALS-TDI, the nation’s leading non-profit research lab for ALS (www.als.net).  The lab is 100% focused on ALS research.   Thank you all for your ongoing support of my efforts on behalf of ALS-TDI. I truly believe we are making a difference in the battle to end this cruel disease. Check us out on Facebook https://www.facebook.com/CrushALSTeamBannon?hc_location=timeline Breen

Andrew Foster

Andrew Foster
  • Rider
  • 4th Trek

Andrew Foster

I am again joining Team "Crush ALS/Team Bannon" to ride to raise money to fight ALS --anything you can do to help to join the fight is greatly appreciated!

Andrew Foster
  • Rider
  • 4th Trek

I am again joining Team "Crush ALS/Team Bannon" to ride to raise money to fight ALS --anything you can do to help to join the fight is greatly appreciated!

Elizabeth Trybus

Riding for those who no longer can!
Elizabeth Trybus
  • Rider
  • 1st Trek

Elizabeth Trybus

Riding for those who no longer can!

This summer I am joining Crush ALS/Team Bannon and riding my bicycle 270-miles in three days in a charity bicycle ride called the Tri-State Trek.  That's a really, really, long way to ride a bike!  I am riding this difficult course to help find an effective treatment for the paralyzing disease ALS also known as “Lou Gehrig's Disease”.  While I have no direct connection to the disease, I am always up for the challenge of fighting for a worthy cause. And I have been blessed with being a part of The Bannon Family. The Bannon family lost their brother/son/father/husband/best friend Chuckie in 2009 after a 3 year battle with the disease.  Lisa and Breen Bannon vowed to ride until they found a cure and have been riding ever since...this will be year #11. Help support the cause and be a part of something AMAZING… Riding is the hard part; donating is easy. Please consider donating to support my ride at https://tst.als.net/donate/?p=51008 All donations go to ALS-TDI a Boston-based non-profit that is leading research into finding a treatment and cure for ALS (www.als.net).  Your support is greatly appreciated and every dollar helps! Thank you for your time and consideration!! Lots of Love, Elizabeth (Liz) Trybus  

Elizabeth Trybus
  • Rider
  • 1st Trek

This summer I am joining Crush ALS/Team Bannon and riding my bicycle 270-miles in three days in a charity bicycle ride called the Tri-State Trek.  That's a really, really, long way to ride a bike!  I am riding this difficult course to help find an effective treatment for the paralyzing disease ALS also known as “Lou Gehrig's Disease”.  While I have no direct connection to the disease, I am always up for the challenge of fighting for a worthy cause. And I have been blessed with being a part of The Bannon Family. The Bannon family lost their brother/son/father/husband/best friend Chuckie in 2009 after a 3 year battle with the disease.  Lisa and Breen Bannon vowed to ride until they found a cure and have been riding ever since...this will be year #11. Help support the cause and be a part of something AMAZING… Riding is the hard part; donating is easy. Please consider donating to support my ride at https://tst.als.net/donate/?p=51008 All donations go to ALS-TDI a Boston-based non-profit that is leading research into finding a treatment and cure for ALS (www.als.net).  Your support is greatly appreciated and every dollar helps! Thank you for your time and consideration!! Lots of Love, Elizabeth (Liz) Trybus  

Timothy Rooney

Timothy Rooney
  • Rider
  • 2nd Trek

Timothy Rooney

Timothy Rooney
  • Rider
  • 2nd Trek

Marguerite Gardiner

Marguerite Gardiner
  • Rider
  • 5th Trek

Marguerite Gardiner

Marguerite Gardiner
  • Rider
  • 5th Trek

Andrew Martin

Putting my mid-life crisis to good use
Andrew Martin
  • Rider
  • 6th Trek

Andrew Martin

Putting my mid-life crisis to good use

Hi, it's that time of year again!  At the end of June, I will once again be participating in the Tri-State Trek to raise money for ALS research. The race is 280 miles, over three days, through the pretty but painful hills of New England. This year is extra special because it is the 10th anniversary of our founders, Lisa and Breen Bannon, and it my fifth year. Our team, Crush ALS/TeamBannon, is also bigger and better than ever with six new riders. Last year, our team raised more than $200,000. We hope to do even better this year. Please contribute if you can. Thanks! Andy

Andrew Martin
  • Rider
  • 6th Trek

Hi, it's that time of year again!  At the end of June, I will once again be participating in the Tri-State Trek to raise money for ALS research. The race is 280 miles, over three days, through the pretty but painful hills of New England. This year is extra special because it is the 10th anniversary of our founders, Lisa and Breen Bannon, and it my fifth year. Our team, Crush ALS/TeamBannon, is also bigger and better than ever with six new riders. Last year, our team raised more than $200,000. We hope to do even better this year. Please contribute if you can. Thanks! Andy

Hugh Macdonnell

Riding for those who no longer can.
Hugh Macdonnell
  • Rider
  • 8th Trek

Hugh Macdonnell

Riding for those who no longer can.

Dear friends:                                                                                                                  At 6am on June 21, I will embark on the Tri-State Trek for my 8th consecutive year.  The Trek is the 270-mile bike ride from Boston to Greenwich, CT to raise money and awareness for ALS -- commonly known as Lou Gehrig’s disease. I started riding the Trek in 2012 in honor of my mother-in-law, Betty Anne Chapman.  She was amused (and possibly skeptical) that I was going to ride for her to raise money.  I was happy that I got to ride twice while she was still alive.   I will never forget the sense of hopelessness our family felt in the face of this terrible illness: no one knows what causes it, it generally results in total paralysis within 2-5 years, and there is still no cure. I ride in Betty Anne’s memory, but I’ve met lots of people since who have ALS and now I ride for them too.  We are giving them hope.  Riding this challenging event, raising money, talking about ALS, helps all those people suffering from the disease face their future with increased optimism. The money we raise specifically supports research at the ALS Therapy Development Institute in Cambridge, MA (www.als.net).  Thanks to the money raised by the Trek, a new potential treatment is headed to the clinic this year.  AT1501, a novel compound discovered and developed at ALSTDI, will begin Phase 1 testing in the next few months. Our team, Crush ALS, has been the No. 1 fundraiser for the Trek for the past 6 years.  With your help and generosity, we raised an astonishing $250,000 last year alone.  This year, the cumulative team fundraising will cross the $1mm mark.  This year, we will have 28 riders and crew (with Margot and my 2 of my kids all part of the crew).   Over the years, I have been joined by several friends; plan to ride in 2019 as the experience and camaraderie is amazing.  Notably, two of our Crush team members met on the Trek and got married 2 summers ago! Many of you have supported me multiple times.  Thank you.  Believe me, I reflect on this as we crank up the Connecticut hills in June.   I continue to ask for your donations because we are making a difference.  Whether you give once or annually, large or small, each bit makes a difference.  We are closer to a cure than we have ever been.    To donate, please click “Donate now” or send a check to Crush ALS, c/o me, Clarion Partners, 230 Park Avenue, NY, NY 10169 or http://tst.als.net/macdonnell. Thank you all for your ongoing support. Hugh  

Hugh Macdonnell
  • Rider
  • 8th Trek

Dear friends:                                                                                                                  At 6am on June 21, I will embark on the Tri-State Trek for my 8th consecutive year.  The Trek is the 270-mile bike ride from Boston to Greenwich, CT to raise money and awareness for ALS -- commonly known as Lou Gehrig’s disease. I started riding the Trek in 2012 in honor of my mother-in-law, Betty Anne Chapman.  She was amused (and possibly skeptical) that I was going to ride for her to raise money.  I was happy that I got to ride twice while she was still alive.   I will never forget the sense of hopelessness our family felt in the face of this terrible illness: no one knows what causes it, it generally results in total paralysis within 2-5 years, and there is still no cure. I ride in Betty Anne’s memory, but I’ve met lots of people since who have ALS and now I ride for them too.  We are giving them hope.  Riding this challenging event, raising money, talking about ALS, helps all those people suffering from the disease face their future with increased optimism. The money we raise specifically supports research at the ALS Therapy Development Institute in Cambridge, MA (www.als.net).  Thanks to the money raised by the Trek, a new potential treatment is headed to the clinic this year.  AT1501, a novel compound discovered and developed at ALSTDI, will begin Phase 1 testing in the next few months. Our team, Crush ALS, has been the No. 1 fundraiser for the Trek for the past 6 years.  With your help and generosity, we raised an astonishing $250,000 last year alone.  This year, the cumulative team fundraising will cross the $1mm mark.  This year, we will have 28 riders and crew (with Margot and my 2 of my kids all part of the crew).   Over the years, I have been joined by several friends; plan to ride in 2019 as the experience and camaraderie is amazing.  Notably, two of our Crush team members met on the Trek and got married 2 summers ago! Many of you have supported me multiple times.  Thank you.  Believe me, I reflect on this as we crank up the Connecticut hills in June.   I continue to ask for your donations because we are making a difference.  Whether you give once or annually, large or small, each bit makes a difference.  We are closer to a cure than we have ever been.    To donate, please click “Donate now” or send a check to Crush ALS, c/o me, Clarion Partners, 230 Park Avenue, NY, NY 10169 or http://tst.als.net/macdonnell. Thank you all for your ongoing support. Hugh  

Margot Macdonnell

Margot Macdonnell
  • 3 Day Crew
  • 2nd Trek

Margot Macdonnell

Margot Macdonnell
  • 3 Day Crew
  • 2nd Trek

James Macdonnell

James Macdonnell
  • 3 Day Crew
  • 2nd Trek

James Macdonnell

James Macdonnell
  • 3 Day Crew
  • 2nd Trek

George (Teddy) Macdonnell

George (Teddy) Macdonnell
  • 3 Day Crew
  • 2nd Trek

George (Teddy) Macdonnell

George (Teddy) Macdonnell
  • 3 Day Crew
  • 2nd Trek