Dan Ferraro's Fundraising Page
Riding for those who no longer can
TWO HUNDRED SEVENTY MILES are coming! It’ll be hot, hilly, and hard on my butt. It will no doubt be difficult, but it’ll be easier to keep going when thinking about every mile headed south we’ll not only be raising awareness, but raising much needed funding for ALS researchers and patients living with this unthinkable disease.
For all the reasons that ALS is heartbreaking, one of the largest ones is the fact that it’s not incurable, it’s underfunded. Cambridge-based ALS TDI is doing it’s part by making strides every day to find effective treatment as soon as possible - we’re doing our part by making sure funds make it to them. 86 cents of every dollar goes directly to this life changing research.
If you’re unfamiliar with ALS, here are a few specifics below:
- Although the life expectancy of a person with ALS averages about two to five years from the time of diagnosis, this disease is variable, and many people can live with the disease for five years and more. More than half of all people with ALS live more than three years after diagnosis.
- Once ALS starts, it almost always progresses, eventually taking away the ability to walk, dress, write, speak, swallow, and breathe and shortening the life span. How fast and in what order this occurs is very different from person to person. While the average survival time is 3 years, about twenty percent of people with ALS live five years, 10 percent will survive ten years and five percent will live 20 years or more.
- Approximately 6,000 people in the U.S. are diagnosed with ALS each year. The incidence of ALS is two per 100,000 people, and it is estimated that more than 20,000 Americans may be living with ALS at any given time.
- ALS occurs throughout the world with no racial, ethnic or socioeconomic boundaries and can affect anyone.
- There can be significant costs for medical care, equipment and home health caregiving later in the disease.
If you’re unable to donate, you’re more than welcome to meet us at the finish line and share a beer with our friend, fearless leader and ALS crusader, Steve Saling. Read more about this amazing man and his contributions to the ALS community here!: http://www.cnn.com/2016/12/22/health/als-steve-saling-residence/
Thank you all!