Steve Latimer's Ride For ALS' Fundraising Page (2016)
270 miles-Boston to NY
The Ice Bucket Challenge, that put the cause to find a cure for ALS at the forefront of many people’s minds, happened two summers ago. An attempt last summer to reprise the spectacular success of that undertaking fell far short. Like many internet sensations, the Ice Bucket Challenge has receded from most people’s memories, their attention drawn to the next new thing.
Alas, the cure for ALS remains elusive and the need for funds to aid in the research no less pressing. ALS Therapy Development Institute (www.als.net), the Boston-based non-profit biotech research firm I support, along with many other groups, continues to make progress, but there is still no cure. While the world is no longer dousing itself in ice cold water and posting the video on-line, those afflicted with ALS and their families, continue to wait, and hope.
Our job will not be done until a cure is found. That need, reinforced by the facts below which were included in my previous years’ letters, is why I ride, and will continue to ride, in the Tri State Trek, the Ride to End ALS, until the goal is met:
• 450,000 people live with ALS globally, 30,000 of whom are in the U.S.
• Any disease impacting less than 200,000 in the U.S. is considered a rare disease, effecting the level of funding for research into a cure.
• Almost 6,000 people per year are diagnosed with ALS in the U.S. That means that the average life span for someone diagnosed is around 5 years. The lack of long term survivors also impacts fundraising for research.
• THERE ARE CURRENTLY NO EFFECTIVE TREATMENTS OR CURE for ALS.
The Tri State Trek funds close to 10% of the ALS TDI annual budget. Thanks to the support of many of you, the team I ride with, Team Bannon/Crush ALS, raised over $172,000 for the cause in 2015. That's an increase of over 35% from the prior year and over 100% since I started riding with the group in 2013.
While I have not had a relative diagnosed with ALS, I have clearly been impacted by the disease through the people I have met who are associated with the Tri State Trek and ALS TDI. The riders and those that they ride for, as well as the doctors and staff at ALS TDI, are truly inspirational. It is rewarding to see our team grow and our fund raising efforts flourish for such an extraordinary cause.
The 270 mile, three-day bike ride, from Boston to Greenwich, takes place June 24-26, 2016. I am asking that you support me as we make our way through the winding hills of Massachusetts and Connecticut.
Please log on to my fundraising page at http://tst.als.net/SteveLatimer to contribute. Many of you are business associates as well as friends. My compliance department would appreciate it if you would limit your contribution to $1,000.
I am very appreciative of your support.