Steve Latimer's Tri State Trek-Ride to End ALS' Fundraising Page (2015)
270 miles-Boston to NY
Thanks to the sensational internet response to the Ice Bucket Challenge, many of you now have at least some passing knowledge about ALS, its crippling, and fatal, impact on those that contract it, and the on-going challenges of finding a cure.
The Ice Bucket Challenge was a windfall for the national organization, and for the small non-profit biotech firm that we support, ALS Therapy Development Institute (www.als.net). ALS TDI specifically received over $3 million (compared to a typical $10 million budget) and, given the short, 5 year average life expectancy of those with ALS, has pledged to spend that windfall quickly and effectively in clinical trials and other urgent needs.
Those extra resources will help advance the goal to end ALS. But alas, that goal has yet to be met, and funds are needed to support the daily operations and fantastic research of ALS TDI to accomplish that ultimate goal. The Tri State Trek, the Ride to End ALS, funds close to 10% of the ALS TDI annual budget. That need, reinforced by the facts below which were included in my letter last year, is why I ride, and will continue to ride, in the Tri State Trek, until the goal is met:
- 450,000 people live with ALS globally, 30,000 of whom are in the U.S.
- Any disease impacting less than 200,000 in the U.S. is considered a rare disease, effecting the level of funding for research into a cure.
- Almost 6,000 people per year are diagnosed with ALS in the U.S. That means that the average life span for someone diagnosed is around 5 years. The lack of long term survivors also impacts fundraising for research.
- THERE ARE CURRENTLY NO EFFECTIVE TREATMENTS OR CURE for ALS.
The 270 mile, three day bike ride, from Boston to Greenwich, takes place June 26-28, 2015. I am asking that you support me as we make our way through the winding hills of Massachusetts and Connecticut.
Please log on to my fundraising page at http://tst.als.net/SteveLatimer to contribute. Many of you are work associates as well as friends. My compliance department would appreciate it if you would limit your contribution to $1,000.
Please be generous. I am very appreciative of your support.