Hugh Macdonnell's Fundraising Page (2013)
Riding for those who no longer can.
As many of you know, I have been training for the ALS Trek this summer for the second time. This is a 270 mile bike ride from Boston to New York which takes place over three days starting this Friday July 19!
This year, we have amped up the team and changed our name. In addition to Lisa, Breen and me, Crush ALS/Team Bannon now has four new riders in 2013: Steve Latimer, Dave Congdon, John McCarthy and John Wilson. We are also adding two roadies in 2013: Lisa's daughter Nell and my daughter Betsy. So Crush ALS is now a force of 9!
Last year our little team raised $30,000 and this year we hope to double that amount.
ALS stands for Amyotrophic Lateral Sclerosis, also known as Lou Gehrig's disease. I have been close to Lou Gehrig's disease in a few sad ways: (1) my mother-in-law, Betty Anne (pictured above in great tennis form), was diagnosed in the mid-90s and lives with this disease today; and (2) Chuck Bannon, the brother of our good friends Lisa and George, died of this mysterious disease in 2009 after a sad three years of decline.
For those of you who have followed this cause over the years, we have some encouraging news: ALS-TDI, the Boston-based lab which is the leading research institute for ALS in the U.S., has been working on new drugs that it considers promising as possible treatment for the disease. The drugs are in various stages of clinical trials. This fundraising is needed to continue those trials to see whether the drugs will be effective. The great hope is that during our lifetimes, ALS will become a disease that people can manage and live with, and is not consistently fatal.
The Trek is a major fund-raiser and contributes about $500,000 toward ALS-TDI's annual $10 million budget.
Everyone has demands on their charitable giving. Especially now. But this is a disease which has historically had limited funding and where there is now real progress to a solution. If you want to and can, please help in the fight against ALS by donating. You can donate online by clicking the button below or by check: please make it out to Tri-State Trek/ Crush ALS and mail it to me at: 171 Linden Ave., Glen Ridge, NJ 07028.
The race ends on the afternoon of Sunday July 21 when the Trek participants ride into Greenwich, CT. It might not be pretty, but if you would like to join Margot and Teddy at the finish line, please let me know; we'd love to have you!
Thank you in advance for your generosity, for helping in this cause, and for giving hope to so many families that a cure is on its way.